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Appears in Newsflare picks
06:07
"I've embraced my disabilities and wear colourful outfits to stand out"
A woman born with one eye and webbed hands and feet loves to wear colourful clothes so people "look at my outfit - not at me because of my disability"."
Kirsty Hill, 32, was born with Fraser syndrome - a rare genetic disorder.
It caused other complications and conditions including cryptophthalmos which meant her left eye was covered over with skin.
Kirsty had countless operations as a baby to reconstruct her left eyelid as well as 40 surgeries to separate her webbed hands.
But she chose to have her left eye removed five years ago and then stitched over in December 2024 after experiencing chronic pain.
Kirsty doesn't want to "hide" her disability away and loves to wear colourful outfits to take back "power"."
Kirsty, who has a PHD in psychology, from Port Talbot, Wales, said: "I want people to look at my outfit - not at me because of my disability."
"It's taking back your power."
"Don't hide away."
"You should be yourself and be proud."
Kirsty's parents had never heard of Fraser syndrome when she was born in December 1992.
Kirsty - who is registered blind and deaf - was born without an upper eye lid on her right eye and her left was covered over with skin.
She said: "When I was a baby I had reconstructive surgery on my right eye."
Kirsty was also born with syndactyly - the fusing of two or more of your fingers or toes.
She said: "Up until the age of three I had to go back and forth to Great Ormond Street Hospital to separate my fingers to some extent."
"I had 40 surgeries on my hand."
"My feet are still completely webbed and I get a bit self conscious of wearing sandals."
Kirsty started getting pain behind her left eye when she was aged 12 - which doctors have never been able to explain.
After countless appointments and surgeries Kirsty decided to have her eye removed in 2021.
She then had around eight surgeries to try and fit a prosthetic in but unfortunately these failed.
She decided to have her eye stitched closed in December 2024.
Kirsty said: "I see it as a grieving process. "
"Having a prosthetic and then not having one was hard."
"I've always been the girl with one eye."
"At the end you accept it and find ways to embrace yourself."
Kirsty estimates she has had around 65 surgeries in total but hopes 2025 will be procedure free.
She has to put drops in her right eye every 15 minutes as she has no tear ducts and can't close her eye but hasn't let her condition hold her back.
Kirsty says she has never shied away from bold fashion choices.
She said: "It's a way for me to express myself."
Kirsty says she gets the odd look and comment but has never been bullied.
She hopes to encourage to embrace their differences.
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