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Exclusive- Breaking the stigma: Viral prosthetic eye video sparks global conversation on NF1

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I live with Neurofibromatosis Type 1 (NF1), a rare genetic condition that has shaped my appearance since birth. Part of my journey includes wearing a prosthetic eye — something I’ve chosen to embrace openly. In this video, I remove and replace my prosthetic eye on camera, not for shock value, but to break stigma, start conversations, and show others that a visible difference is nothing to hide.

This is about acceptance — of ourselves and each other — and showing that life with a condition like mine can still be lived with confidence, humour, and pride.

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