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乌鲁木齐:“巨脚”女童渴望穿鞋
四岁的女童,该穿多大的鞋子呢?克州女童古丽古娜依给出的答案一定会让您大吃一惊。为什么呢?因为她的脚比妈妈的还大。
在兰州军区乌鲁木齐总医院见到了古丽古娜依•沙吾提,她细小的身体拖着一双严重畸形的大脚,穿着袜子颠簸的跟在妈妈古丽巴哈后面,双手也异于常人。
古丽巴哈说,她曾带着小古丽到喀什检查,初步诊断为巨趾(指症,但是由于丈夫早逝,全家人的收入就只有她每月3000多元的退休金,加之语言交流障碍,小古丽的病就只能拖着。
古丽巴哈一家一直存款,为小古丽将来有一天能看病。上个月底,古丽巴哈所在的社区和住村工作组给她们带来了好消息,联系到了北京天使妈妈慈善基金会,还组织村民捐款,小古丽一家可以到乌鲁木齐治疗了。
经过兰州军区乌鲁木齐总医院烧伤整形科的诊断,小古丽所患的是罕见的先天性巨趾(指症,发病率约为万分之一,而双手双脚都患病的更为少见,初步计划是重点对小古丽的手部进行手术。
兰州军区乌鲁木齐总医院 沈运彪 烧伤整形科主任
“分期做,还要做截骨,包括骨骺的处理,神经的处理、分离,我们要做的比较精细,至少得五六次,手术整个她的治疗费用,恐怕得十五万开外。”
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